We run hard so others can breathe easy
Advocate
Inform
Reform
Help us get the Supplemental Oxygen Access Reform (SOAR) Act passed
Contact your members of Congress and ask them to
cosponsor the Supplemental Oxygen Access Reform (SOAR) Act
Read about the SOAR Act and how to contact your Congressional representatives.
Welcome to Running On Air
Running On Air was initially founded by Mary Rose Kitlowski in 2014 to change attitudes around supplemental oxygen. Mary has a rare lung disease called Primary Ciliary Dyskinesia (PCD) which has caused another lung disease called bronchiectasis. She started doing 5Ks with her 5 pound supplemental oxygen and has the goal to do a race in every state.
After becoming a nonprofit in 2021 our Advocacy, Informational, and Reform work has expanded.
Our mission is to help others breathe more easily through access to oxygen appropriate to their needs. Our focus is Advocating, Informing and Reforming through raising awareness, promoting policy changes, and educating patients and providers about supplemental oxygen and lung diseases–especially Primary Ciliary Dyskinesia (PCD) and Bronchiectasis. We run hard so others can breathe easy. We also want to encourage those with disabilities to find safe ways to become and stay active.
Our dreams for the future are big.
Share your story
Share your supplemental oxygen story and/or join our newsletter email list
We need your help to let our legislators know the problems we have with access to supplemental oxygen. We need stories from every state.
Get the Breathe Easy Bulletin
Our newsletter, the Breathe Easy Bulletin, is a great way to keep up to date with areas of interest to our community, like educational meetings and webinars, newly published research, trial opportunities, advocacy efforts, and much more.
The Rebekah Goldstein Giannakos Memorial Research Grant
Running On Air announces a research grant in the memory of Rebekah Goldstein Giannakos that will fund research to find a cure for PCD, and treat pseudomonas and NTM infections.
Follow Us On Social Media
Stay connected with us on social media to see our daily inspirations and facts, for alerts when opportunities and events arise, like webinars or a call to action, and for other information.
Learn more about:
portable oxygen concentrators
Read about Portable Oxygen Concentrators (POCs) and what you need to know.
PRIMARY CILIARY DYSKINESIA
PCD is a rare, degenerative disease. There are less than 600 confirmed diagnoses in the US.
BRONCHIECTASIS OVERVIEW
Bronchiectasis occurs then the airways are damaged causing them to widen and lose their elasticity.
supplemental Oxygen
Learn what you need to know before going on oxygen to help make the best choices for you and your lifestyle.
LIQUID OXYGEN
Overview of liquid oxygen, important differences and considerations, and what you need to know.
traveling with oxygen
What you need to know about flying with oxygen, including helpful links to the FAA and airlines.
Next webinar
New this year is our Conference Highlights Series (CHS). With so many major conferences presenting new research on Bronchiectasis, PCD, and NTM throughout the year, our goal is to make this information available to patients and family members.